Clinical and histopathologic features and immunologic variables in patients with severe chilblains. A study of the relationship to lupus erythematosus.
Chilblain lupus erythematosus (lupus pernio): clinical review of the Mayo Clinic experience and proposal of diagnostic criteria.
Below are some pictures of my feet with Chilblains sores. It is extremely painful and I wanted to cut my toes off. When the sores start to heal the pain is replaced with intense itching. Not fun. Chilblains Lupus is a rare symptom of Lupus and most Rheumatologist have never seen a case. Three Rheumatologist saw my feet in person and another three saw the pictures. None of them could identify the sores. Trental and Plaquenil are suggested as treatment for Chilblains Lupus in medical journal articles. Prednisone instantly healed my sores and Procardia helped keep them from returning.
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I have been diagnosed with Hashimoto's and have chilblains. The itching drives me nuts (but then again, maybe I've always been nuts.) :)
ReplyDeleteWOW. I have been suffering from this for a few yrs now. I currently am dealing with a flare up. One toe is extremely painful, so much so I limp.
ReplyDeleteFew yrs back the Dr just gave me some cream for athlete foot. I found your page and the thing is my Mom was diagnosed with Lupus yrs ago.
Thanks for sharing your story.
I have been to doctors since I was 6 years old regarding this issue...I am now 29, and every winter without fail, I get horrible breakouts on my toes. Through my own research I've diagnosed myself with chilblains syndrome. I hope to find a doctor that can give me some insight as to why it's happening. As far as I know, psoriasis is the only immune disorder I have. Us people with immune disorders get all the weird crap! This time last year I was prego and I did not have a breakout...I am assuming it was due to the increased blood flow and circulation....but now it's back...toes get so swollen I can barely wear flip flops..which defeats the whole purpose of trying to keep your feet warm to prevent the sores from popping up, ugh! I found a website that has a cream for chilblains....it is www.aidanceproducts.com ...I will be ordering some...I pray it works.
ReplyDeletemy breakouts start usually around November and don't end until April...they start out red and sore, then itch horribly, start to die off and turn purple, then turn black and peel!
ReplyDeleteI'm just finding this website and suffer from painful breakouts from Nov - May. Have you found anything that works. Mine is getting worse and worse.
DeleteI have suffered with this since I was about 15, I am now 35. It gets worse every year. I have seen several doctors and no one can help. My red sores are now so bad they are purple, red, blue and ulcerated. I am taking pictures tonight and bringing them to the Doctor.
ReplyDeleteI use to have that problem & with my lupus rashes thanks to a great friend I was given sudocrem. It helps with it & I don't ever have to be in pain again. Amazon sells it. A little tub goes a long way.
ReplyDeleteI have Raynaud's and get horrible Chilblain's, they start in the fall when the temperature dips and reoccur until spring. My ANA levels rise when they first break out.
ReplyDeletePrednisone helps, but I always end up in the ER where I'm told it's Bueger's with cellulitis and to stop smoking (I've never smoked). I had one Doctor insist it was Herpetic Whitlow and put me on Herpes meds. I was so embarrassed!
Thank you for your research and sharing. It is nice to know I'm not alone. I've been through the same experiences as many of your readers. I was diagnosed with Lupus in 1992 and Raynaud's started 4 years prior to the diagnosis. I get severe chilblains ,first on just the fleshy part of my toes, and now on the tops of my toes as well and down the outer edges of my feet where the pressure of my shoes is. My toes get so swollen, red and burning that I put hydracortizone ointment on them and socks before going to bed. While I am standing brushing my teeth at night, it feels like my toes are going to explode and I have to sit and put my feet up. Very painful. My fingers go white from making dinner because I am dealing with cold food from the refridgerator. They turn white from driving and holding the steering wheel too tight. I find pressure is almost as bad as "cold". Well that felt good to vent, knowing you all understand what I am talking about. Thank you.
ReplyDeleteGet a steering wheel cover - wider grip, so the clenching is not so bad and doesn't leave your hands too cold - or hot! Discovered this years ago.
DeleteJust found this. I thought I had a fungus infection. My toes look exactly like yours. Mine started as just little pinpoints that were painful and then spread. I have lupus and also raynaud's. it has been exceptionally cold where I live and I can recall a few days when my feet were basically frozen. Should have known better to always wear boots in the winter! Thanks for the post!
ReplyDeleteI have had aps for 41 years (since 11 years old) . i nearly lost my 22 year old dughter this year to SLE. but i have always suffered with these chillblains features on toes fingers,nose and ears, i find taking an asperine really helps although i should'nt as i am on warfarine.
ReplyDeleteI have had a red swollen toe since 2001. Now it is also in my fingers. It does not itch at all. Today I was diagnosed with Chilblains. I do not have bumps, just an overall redness and burning. Not Raynaud's. Doc wants me to start chloroquine. Good luck to all with this painful unsightly condition.
ReplyDeletehi.so i was DX with lupus in 1996 at age 24 and apart from joint aches and the rash and the chilblains previously have been symptom free since. This winter however has seen the return of slightly achey tender hands...seemng puffy and the tell tale redness around the cuticles on some fingers and overall generally uncomfortable tender feeling. I requested bloods earlier n the year and all appeared to be normal. Overall i think things are ok Lupus wise and greatfull its not given me a hard time, but i am wondering if it is making an appearance again? the mention of planquil and steroids seems familiar as that is what was prescribed when i got sick and magically all those symptoms dissappeared. I remember thinking OMG the chillblains re gone. Im wondering if maybe i ask the Dr to prescribe planquil again ? On and yes the pictures of chillblains on your feet - that too was me...20 years ago.
ReplyDeleteIs there a difference between just having chilblains. And chilblains lupus? I was just diagnosed with chilblains.
ReplyDeleteHave lupus condition and recently had a dermatologist diagnose Chilblains due to red toes. Thank you for this very informative article. Interesting thing is that my rhuematologist has seen these and never indicated anything about Chilblains. Went to the derm. due to discoloration on legs, originally a rash after flying and then turned to brownish marks. Any ideas on this? My cutaneous lupus and Sjogrens seem to go in new directions all the time. Often feels like the medical pros are still learning about these AI conditions as we bring them our symptoms.
ReplyDeleteYour photo of your toes looks just like my picture of my toes! Was at the Gp but she did not have an idea what it was.
ReplyDeleteI have psoriatic arthritis and now this.
Thanks for the pictures and information.
Good luck everybody!